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Old 01-18-2012, 11:58 PM
Tracy9 Tracy9 is offline
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Join Date: Dec 2010
Posts: 166
10 yr Member
Tracy9 Tracy9 is offline
Member
 
Join Date: Dec 2010
Posts: 166
10 yr Member
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Just wanted to let you know that I also have both small fiber neuropathy and MG. I was diagnosed with small fiber neuropathy less than a year before MG. And I JUST noticed my eyelids are starting to droop exactly the way you explained yours....so very glad to get that information. At first I thought I must be getting a really bad eyebrow wax job, then I couldn't figure out where the area went where the eye makeup goes, then I kept thinking my eyes looked funny; but because it wasn't what I'd seen pictures of I never thought MG.

My eyes are the last of the symptoms to show up, I have generalized. I didn't think this was going to happen, but it's almost like my eyebrows are touching my eyelashes now. It sucks!

I was in the hospital in July for 8 days in a crisis, though I was not vented. It sucked. I've never been so weak in my life. Looking back, the heat probably contributed plus I'd missed some IVIG. My MG is managed with IVIG and Mestinon. I get IVIG every other week for 2 days.

Careful with that IVIG rate; you are describing signs of aseptic meningitis. Hopefully it won't get worse; it is just treated with pain meds and fluids until it passes anyway. It is caused by them infusing it too fast usually.
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