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Old 03-29-2007, 10:47 PM
Missyat Missyat is offline
Junior Member
 
Join Date: Aug 2006
Posts: 18
15 yr Member
Missyat Missyat is offline
Junior Member
 
Join Date: Aug 2006
Posts: 18
15 yr Member
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Been a very rough month...

Kevin is loosing cognitive skills left and right, his school work is plummeting fast.

I am feeling very discouraged and let down.

Hubby lost his job and found another one, our health insurance runs out on saturday (march 31st), COBRA (cha ching) for a month. Kevin is now on medicaid, and has coverage (phew).

Spring break for Kevin is the first week in April (starting next monday)... by Wednesday we are on the road for a 300 mile one way trip to the epi.

We will be discussing steroids, and other treatments as the med machine has now gone dry.

epilepsy really sucks bad
__________________
Missy, mom to Kevin 11 year old
MAE (Myoclonic Astatic Epilepsy) or Doose Syndrome
First VNS July 2002
Second VNS Nov. 2005
14 meds later still playing the dosage game
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