Junior Member
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Join Date: Aug 2006
Posts: 18
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Junior Member
Join Date: Aug 2006
Posts: 18
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Been a very rough month...
Kevin is loosing cognitive skills left and right, his school work is plummeting fast.
I am feeling very discouraged and let down.
Hubby lost his job and found another one, our health insurance runs out on saturday (march 31st), COBRA (cha ching) for a month. Kevin is now on medicaid, and has coverage (phew).
Spring break for Kevin is the first week in April (starting next monday)... by Wednesday we are on the road for a 300 mile one way trip to the epi.
We will be discussing steroids, and other treatments as the med machine has now gone dry.
epilepsy really sucks bad
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Missy, mom to Kevin 11 year old
MAE (Myoclonic Astatic Epilepsy) or Doose Syndrome
First VNS July 2002
Second VNS Nov. 2005
14 meds later still playing the dosage game
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