I am feeling AMAZING one week after my first maintenence dose of IVIG.. I had forgotten how it feels to feel "normal"!! it has been so long, still not back to my old normal.. but hey Ill take this as a new normal!
Anyhow, I was curious if anyone else had side effects from IVIG like this - i have a rash on my palms and feet- like teeny tiny blisters they itch a little, but not a lot.. my neuro wanted me to see a dermatologist to see if it had anythign to do with all my wierd neuro symptoms, but 'im thinking a reagular dermatolgist won't know if this looks like an "ivig reaction" rash..

Also, anyone else get chest pain at the beginning of their infusions?? I noticed it both times- just a wierd chest pain for the first 15 or so minutes and then it gets milder as time goes on.. but my chest was kind of "sore" for about a day afterwards too- and then i just started feeling great.. soo just curious if i'm "normal" with these side effects! Hope yall are all doing well!