I had a second neck fusion in Nov/2008 and before it the myelogram went terribly. I think this is when the damage occurred.
But I did not have a regular PCP and only was seeing a neurosurgeon and thought the symptoms which developed after the surgery were due to the extensive damage to my spinal cord/brain stem.
I then found a PCP but had so many issues it was definitely overwhelming to him. You see, I had carpal tunnel and cubital tunnel, TMJ, Spinal issues, and other things too. So, when I told him my symptoms he gave me chronic pain meds.
Around 3 months later I tried weaning myself off the amitriptyline and the headaches, shooting electric facial/brain pains were so severe he put me right back on the meds. I did this 3 times trying to get off meds. Never was I able to due to severe pain.
I was having severe headaches, ear pain, leaking in ears, nose and eyes, vertigo, gait issues, nerve pain down both arms, nausea...etc. He just increased the meds each time I complained. Gave me meds for sinus infection, allerigies, and ear infection.
Now, it's three years later and he sent me to a pain specialist and he finally talked me into spinal injections. This enhanced my symptoms 10-fold!
Finally, I went to ER and he said I may have persisitant spinal leaks. So I look it up....BINGO! This is exactly what I am experiencing.
Now, I am about to have a second round of injections and I wanted to see the pain specialist before he did this procedure. He assured me its not a leak. He said he will get me an appt with a neuro...this takes 3months because I am in a county hospital program...but he walked in with an appt for a week from now.
So, any suggestions? The injection procedure is Feb 1, 2012. Should i come right out and say its a possible leak? I'm afraid if I don't he will say its simple headaches! Then again some doctors don't know much about persistant leaks, do they?????
PLEASE HELP! I am in severe pain and no doctor is helping me!