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Old 01-20-2012, 07:03 AM
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mrsD mrsD is offline
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Join Date: Aug 2006
Location: Great Lakes
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mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I would start on some B12 ASAP... did the neurologist TEST for this? It is the most likely cause of nerve problems.

When I was pregnant I lost 80% of my nerve functions in my hands from carpal tunnel. This was a hormone thing, which combined with my growing hypothyroidism which was NOT diagnosed then, it was a painful 4 months for me! Hypothyroidism is one cause of nerve damage. I had EMG and then one steroid shot in the right wrist so at least one hand would work. (I declined the left hand shot offered because I thought that would affect my baby--I was 5mos pregnant).

Many people have low B12 and don't know it. Levels below 400 are even still passed as "normal" by many doctors today!

http://www.aafp.org/afp/2003/0301/p979.html
There are doctors who keep up on new information, as this medical site shows. It is from 2003, and still we see here patients being told levels of 250 are normal! (US reporting concentrations differ from other countries).

I'd start here, and rule out B12 issues. It is important to begin with the common things first and then move on to less common.

Diabetic issues also cause nerve damage. There are supplements shown to help with diabetic neuropathy in medical studies.
Benfotiamine (a special form of thiamine B1)

acetyl carnitine (which helps the mitochondria make energy when glucose is not getting into cells)

R-lipoic acid stablized (a new better form of alpha lipoic acid)

There are drugs that cause nerve damage:
statins for lowering cholesterol are common, and so are fluoroquinolone antibiotics--Cipro, Levaquin and Avelox, and another antibiotic, Flagyl.

All of these issues are far more likely than ALS.
Here is my drug thread... please take a look.
http://neurotalk.psychcentral.com/thread122889.html

supplements for neuropathy:
http://neurotalk.psychcentral.com/thread121683.html

Diabetic neuropathy:
http://neurotalk.psychcentral.com/thread158275.html

B12 thread:
http://neurotalk.psychcentral.com/thread85103.html

With specialists today, one does really not get "special" treatment. Their mindset can be very narrow, and not take into consideration other medical aspects of each patient.
Places like this exist so that patients can know what questions to ask, what tests to ask for, and sadly, once the tests come back, what treatments work best (because doctors at times cannot even treat things adequately!--when nutrients are involved)
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