Awe, Bless you Ginnie and Abby!! What a comfort. I felt so much better finally getting some questions out and then the replies bring so much relief Just speaking about it out loud (if you consider this out loud and I DO :-) is a relieving feeling.

I will try to answer both of your questions in order:

"Have you had more than several neurologists look at your fiancee'.?"

He has seen two different neurologist. The first one did the MRI and mestinon. Then that doctor referred us to MG/ALS specialist in our home town. This neuro is very active in ALS and has numerous patience with MG. (According to him) So, I feel we are in great hands. I am unsure of how many patients (in both ALS and MG) he has that start with speech problems. Getting my fiance to go to another doctor may take an act of congress. He has never been one to get sick or go to a doctor, so this alone is a daunting feat. I cant get him to go back to the neuro to describe the worsening of his conditions.

Mestinon questions: " How much was he taking? Did he try a much lower dose?"

He start on 60mg, three times a day then lowered to only twice a day. After this is when he was taken off. What is the "norm" dosage?

It was said that the swallowing and breathing (He has told me and I have noticed him getting out of breath easier, but this comes and goes) is serious, that is what scares me. This man is like all others...stubborn and will not admit to feeling any discomfort. I am frightened of it getting to a very serious point before he does anything about it. I can't seem to impress upon him how important all this is. He says he is just "getting older" and these symptoms are age related. He is only 48.

How long after starting the prednisone should it take to start seeing a difference? He is scared of this drug and getting him to start it has been a fight too. He gets upset because he is being treated for something he has not been diagnosed for. Through reading it seems without clear indication of blood work, this is the right step to take. I have heard of the tensilon (sp), have any of you had that?

Bless you both for such warm welcomes!! What wonderful ladies you both are. I am giddy inside to have found you both!!