Quote:
Originally Posted by seacoasthalo
Hi Jana!! Yes, the neuro has mentioned ALS. And I may just go on and repost over there. That is the scary side of all this. Without fatigue, eye problems, and neg. blood results for MG...it is frightening. When you say familiar, are these symptoms you have?
I so appreciate this. I have kept this bottled up inside and this is such a relief!! THANK YOU ALL!!!  |
When I said "familiar" -- I wasn't talking about myself -- but, about a young man whose blog I followed for several years. He had Bulbar ALS.
Here is good website that describe the symptoms:
http://www.buzzle.com/articles/bulbar-als-symptoms.html
I'm praying REALLY hard that ALS is NOT what your fiance has!
Yes, keeping things bottled up is NOT good -- and it sounds like maybe your guy doesn't want to talk about it much?? We'll be here.
BTW, several members have been diagnosed with Tensilon. It typically has to be used in a hospital setting -- there can be side effects -- heart problems, I think. But, I have heard of ALS patients responding to Tensilon, so, I'm not sure if it would confirm MG in this case.
http://neuromuscular.wustl.edu/mtime/mgdx.html