Since you have a clotting disorder and have chest pain every time you get an influx of fluid into your circulatory system, it might be a good idea to get a 2nd opinion from a cardiologist. Have you ever had an ECG/echocardiogram/stress test (real or chemical)?

The reason medical mistakes happen is because ALL symptoms are chalked up as normal. They aren't always normal.

And the chest pain and rash might be 2 symptoms which are not necessarily related.

I'm going to say this again. Do you want a podiatrist to do a colonoscopy or a graphic designer to fix your house's plumbing or a politician to fix anything?!! You need the right specialist for the right job. It's a very good idea to have a dermatologist look at your rash. Take photos of it in the meantime. Or have someone else take the photos, someone who has steadier hands. It doesn't matter if the dermatologist is not from a research institution. Rashes have very specific signs that doctors look for and they can do a biopsy if necessary - and send it off to a research institution.

I just don't think chest pain, whatever the cause, is anything to dismiss. Pre-treating and post-treating with Benadryl and Tylenol is great, plus lots of water, but you really have to take new symptoms seriously.

And it would behoove you to listen to Mrs. D. A D-dimer is not an unusual test to have, after you've had IVIG and chest pain. Have you ever had that done?

It's great that the IVIG is working for you. I hope it continues to be something you can have.

If I seem overly concerned, it's because I've seen one too many things get missed by doctors when a simple test or two could've kept someone from more harm.

Annie