I am sorry to hear that you have multipal things medically going on. The RSD in your mouth is not so good I know. I have heard of Chairi malformation. There is a forum here for that. If you would use the search bar at the top of that page and type it in, it should lead to that forum. I do know there is help for that disorder. I hope your neurologist is a good guy and that you like him. I sure think that makes alot of difference. Having faith in your doctors relieves alot of the fear. Please keep in touch. I will keep you in my thoughts and prayers. You already know there is the RSD forum. I hope you make alot of friends here. Compassion is what I found here for sure. Please take care of yourself. ginnie