Found some blogs:
http://kathysalsblog.com/

http://friendsofjasonorpe.org/jasonblog/

http://alsboy.com/

http://alschronicle.blogspot.com/

http://myjourneyals.wordpress.com/

Rough reading here -- maybe in these words you will find something that is TOTALLY alien to your fiance's symptoms -- and you can sigh with relief!!