Quote:
Originally Posted by aweickgenant
As a new member am not sure if there are more current posts regarding this topic but having arrived in Texas about 1 1/2 months ago (today:1/20/2012) and my daughter being a new patient I can tell you briefly what led us here and what we have learned since arriving. Though a new acquaintance we contacted several people who had been seen by Dr. Rhodes and either were in remission or a much lower level of pain that they were able to rebuild their lives. We have been running out of options, having used both inpatient and outpatient at top rated RSD programs, numerous meds and read all the research (my husband and I both PhD researchers specializing in pain), suffice to say short of the coma and ketamine infusions, we tried everything we have come across, to no avail. We arrived in Texas to rave reviews from unbiased & impartial people who have never met the man, but new firsthand patients of Dr. Rhodes. For example, here at the Ronald McDonald House (reputable charity housing critically ill children & families), where we're living, 1 long term employee has seen at least 5 kids leave either in remission. My daughter has had full body RSD from start & is too sensitive for the electrodes, so doc is using magnets to do similar treatment as the STS/VECTTOR machine, until her sensitivity decreases. We're not a success story yet, but I can speak about the doctor himself to say, rarely have a met a more personable & caring person, let alone a doctor - and I have been around doctors my entire life (e.g., father, ex-husband, past/present coworkers, and all those I have seen personally for my large family & daughter w/RSD).
So “meekobindi”If you have bought the machine, then being his patient will cost you substantially less )1st exam = $850 & each office visit is $100/day (you’ve already paid for machine = $4500), and who knows maybe your husband will be one of the lucky ones who leaves in a few weeks a new man. Besides, I know you if you call he will return your call  within a few days & he will talk your ear off!
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So sorry to here about how your daughter is suffering. I hope the STS Treatments continue to help her. I can not give you any input on the treatments I have never done one, but I can say I have attended the RSD Walk in NYC for the past 3 years and there's always a group of people who support him and the treatment.
If you don't mind me asking as pain researchers I was wondering what your opinion was on ketamine?
Gabbycakes