Hello Meek, I am so sorry things have been difficult. I would not do anything that seems to make a condition worse. Also to have some device with no directions in its use, would make me very cautious indeed. You do not want anything that would increase the level of pain experienced. I would hope that you would seek another opinion, and maybe go in a different direction. I also had a friend who had the morhpine pain pump. Technically, you are to receive fill ups, before the machine is totally empty, thereby elimating that period of time, where the pain can come back in full force, until the machine is re-filled. The gal that I know who has one is a Vets wife. She never had to experience that between time that was otherwise horrible.
please consider another evaluation, and keep posting here with your concerns. I also consider the cost of that book rediculas. Somebody is asking alot of money for just one book it seems. That sounded fishy to me.
I hope and pray there is a solution to the pain. I know also that you worry about the possibility of having to take morphine. I may have to be on this the rest of my life, and I don't like it eithor, but truely, it is a blessing which I am grateful for. I try to think of it in a possitive way, much like a diabetic that needs insuline for a good quality of life. I really do wish that there is an answer to the pain with another neruologist. The RSD forum here is fantasic too. Take care and I wish you all the best. I am just another member who travels between the boards to try and offer support. ginnie