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Originally Posted by AnnieB3
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Thank you Annie, I already know I have MS but the Doc. kept thinking the swallowing problem was from the MG. Since I was dx. with both he felt MG was more likely the cause of week swallowing.
It was just so long and hard to break out of his box and think what else can be the cause since the rescures of IVIG would not bring me out of it
I'm really glad I went for the 2nd opinion and He (the Neuro) was asking his partners what could be causing this.
He has mention me going on steriods but I do very bady on them. I get weeker instead of stronger and a bit crazy thinking.
So then he mentioned ATCH which I had taken many years ago but I also did badly on those shots, so I guess its all wait to see what the 3t MRI picks up and if there is something there how they can treat me for it.
I am still a bit concerned about the IVIG but I think maybe they are right, thats the only way to see if its doing me any more good or not.
I had a spinal tap over 20 years ago and it showed I have MS, I don't want to go thru that again. It took me 2 weeks before I could lift up my head without the most horrible headache from it.
Thank you again for your support
P.S My B-12 is over 800 and I have started taking a drug food product called Deplin which is a broken down form of Folic Acid since my blood work showed I have some thing wrong where my body can't break it down and so all my life I haven't been getting enough folic acid which is a must for the brain and heart. I have to admit I feel my energy level Last alot longer since I'v been on it. Less moody too