Thank you Annie! I just want to add one more irritant to the list. My nueros ( the two I've had) always want to know what "percent" better I am. Better than when exactly? Yesterday, last year, before I got sick... Let's just say these are the things I have been able to do recently and the consequences for doing them.
Now if we can find a way to make the literature explain more correctly our disease...
I also wanted to talk about telling the new MG ers the full truth about it... It took my nuero over a year to tell me that he was hoping I would get back to normal, but by this point, he thinks this is as good as it's gonna get. Now why couldn't he answer that question the 20 times I asked him what can I expect for the future?
Jessica