I've tried pred, immuran and currently cellcept. All to no avail. Unless you count hair loss, difficulty healing, trouble sleeping memory problems, ect. As working. I've just had blood work done to find out if the meds are causing these side effects. But even if they aren't, I'm still not feeling better on them. I'm tired of trying drug after drug of chemical cancer causing useless medications. I know I can refuse these meds, but I don't want my doc to think I don't want to get better. If you don't mind, I would love to hear why some of you are not taking them. I use mestinon and timespan and monthly IVIG, which kept on a strict schedule seem to be helping more and more.
Thanks in advance! I hope this finds you all strong and well.
Jess