Hi

My symptoms are very hard to live with. Dr diagnosed TOS but I don't have any venous impingement.

I have svere muscles spasms in neck such that if I recline my head back a little or try to lie back it feels like I am being strangled. My nights are spent sitting up in recliner with very little sleep.

They trigger off daily migraines as well. I also have have been mostly bed or housebound for 30 years with ME/CFS and I think my bad posture from this has caused the TOS.

I do wonder if I have TOS or just muscle spasms.

I have been having physiotherapy, massage, chiropractic and will try acupuncture next. The scalene stretches make it worse.

Feeling desperate as I can't tolerate many medications which may help. Its been interesting to read of everyones experiences.

Loranne