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Originally Posted by doug1017
I live in missouri and my son is 11 yrs old and has rsd. A foot doctor has been treating him and he doesnt know much about treating rsd so its time to switch drs. I have been looking and searching but I cant find any drs that deal with rsd that will take kids. Does anyone know a good rsd dr for kids I am by st louis but will travel wherever needed
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Hi Doug,
Very sorry for your young son. I see you live in St. Lous. We have a neighbor, we live in NJ, who has severe cerabal palsey. About 5 years ago that would of made hime 12 at the time. He and his family traveled to St. Louis to get him treatment for his condition. I know this is a completely different condition than RSD but I remember speaking with the parents or someone close to the family as the area did many fundraisers to get him there, pay for hospital expenses, travel etc.. I don't know the name of the hospital it was St. something I can find out if you can't. I don't know if they do treatments for RSD there but it's close. I got RSD from a fall, broken arm/elbow during a roller blading mother/daughter outing and fell while skating. I went up in the air landed on my elbow hitting steel transition strip, it was a freak accident. The hospital who I finally found in NYC was HSS.Go to
www.hss.edu. It's the web site for the Hospital For Special Surgery in NYC and they are a premier hospital for orthopedics and rheumotolgy plus many other conditions. They have an incredible peds. division, it's worth looking into. I don't know if you will find a Peds. RSD doctor but if you start with a peds. ortho or someone who treats foot injuries he can recommend a pain doctor who can treat your son. I have found that pain doctors are the more experienced in treating RSD and can do more extenstive treatments. Many go to a neurologist who also treat RSD. Neurologist can not offer a full range of treatments for pain as a pain doctor can. Most or if not all pain doctors started out as anthestiologist(spelling) I quess that's what gives them a little edge over neurologist since RSD is a pain condition and they are trained in haulting pain.feeling, etc. during surgeries. This is only my opinion, others feel the opposite.
Wishing you and your son the best.
Gabbycake
The one thing I have to say it is getting very hard for patients to get established and to received proper treatment for RSD. Another thought is go to google and search the name Jim Brotch or Jim Broatch or head of RSD Association in Connecitcut. Sorry I'm rushing sorry. He has a world of information he may be able to give you some suggestion.