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Old 01-26-2012, 05:32 PM
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Join Date: Aug 2011
Location: delaware
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alt1268 alt1268 is offline
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Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
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I have rsd of the right foot and they do lsb (lumbar sympathic nerve blocks) after the shot my thigh is usually numb and my foot is bright red. As your dr. talked about the next step. I am unsure as far as pregblin with rsd. I think it is a matter of different strokes for different folks. My next step is a stimulator trial and if that fails I am requesting ketamine.
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Originally Posted by mnp2011 View Post
Just thought I'd post an update on my progress. I got all my blood tests and bone scan back and they didn't show any bone infection of any kind. So my pain specialist now tells me it looks like a sub-form of CRPS in both my toes.

I've since had an intravenous sympathetic lumbar block on my right leg (tourniquet of the lower leg and injected anaesthetic and sympathetic nerve block liquid) into a vein in my foot. This was 7 days ago and when I go on a cross trainer for 30 mins, both my feet seem to swell up and go red exactly the same i.e. the block doesn't seem to have had any beneficial symptom easing effects.

From this I understand it is SIP or sympathetically independent pain - meaning from what I gather as confused brain signals to the feet, rather than local damage in my feet?

I'm due to see a different pain specialist, specifically in CRPS next week, but just wondering what the thoughts were here too? If it is a SIP form of CRPS are there any recommendations on what I could do now? Is it a case of re-training my brain for the correct signals? - if so how?!

The docs are running out of ideas now, but my guess is probably a dose of pregabalin that was talked about before.

Any thoughts much appreciated
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GOD help me be faithful in the midst of my suffering. Alt1268
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