Hello! I've been reading this forum for weeks now. I've had TOS for over 30 years. I've been to every possible type of doctor who could find no reason for the pain I had. Over the holidays I was having arm spasms, so I did some surfing and came up with a chart that showed exactly where I'd been hurting all these years. I looked into TOS, gave Dr. Dean Donohue a call on the off chance that this is what I had, and went in for a visit. After going to physical therapy almost every other year of my life and feeling like a complete crazy person, he found that my first ribs have congenital abnormalities that are likely the cause of my pain.
I'm nervous about pursuing surgery, especially with two kids and a husband who isn't a great caregiver. Being home bound and unable to drive also seems pretty tough. But, the pain is dreadful and has affected my quality of life.
I swim almost daily and do pilates (not well at all, but I enjoy it). I worry that lying around for a few months will result in depression, which I'd like to avoid.
Anyway, that's all I've got! Thanks for listening and thanks for sharing your stories which have helped.