I am now 37, but was diagnosed in 2002 when I was very symptomatic. I was given pain killer after pain killer. I was given medication that no one should ever be given. Lucky for me, I couldn't tolerate pain pills.
Except for daily headaches (which I learned to live with) .. my symptoms went away. They returned in the spring of last year, and again.. Doctors kept throwing pain pills my way. I am currently suffering from extreme fatigue, horrible face,neck,head,shoulder and back pain, but I treat my symptoms in other ways. ( With exercise, diet, heat and cold packs, massage). I'm wore out from this disease but I refuse to hand my life over to narcotics.I refuse to give up! I'm so glad you posted this. Thanks!