My daughter was diagnosed when she was 11, she's 15 now. She did a three week inpatient program at Children's Hospital in Seattle. There's also one in Philadelphia (CHOP), Boston and Chicago. I know there are more but I'm not familiar with them.
Dealing with doctors who don't understand the disease is the most frustrating thing and a total waste of time and money.
Wendy
Quote:
Originally Posted by doug1017
I live in missouri and my son is 11 yrs old and has rsd. A foot doctor has been treating him and he doesnt know much about treating rsd so its time to switch drs. I have been looking and searching but I cant find any drs that deal with rsd that will take kids. Does anyone know a good rsd dr for kids I am by st louis but will travel wherever needed
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