Did all of the tests come back yet? Have they run your IgA, IgG, etc.? If you are below normal in these, your antibody tests may be false negatives and your doctors will have to go by clinical exams and response to treatments.

Considering how bad you got, it sounds more like MG than LEMS. But, as Abby said, LEMS isn't exactly predictable either.

If you're worried about possible cancer, there are markers the can look at to check on that. Also, small cell lung cancer is common in LEMS and they have done a Chest CT on you, right?

Antibodies can also be so busy attacking your tissues that they don't circulate in the blood all the time. Ups and downs in antibody tests is NORMAL and they may not catch you at a time when yours are available for that test.

Annie