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Old 01-30-2012, 03:20 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Abby, If you really think that you have something other than MG, you should trust your instincts and talk to your neuro. But you know how some doctors don't like to be wrong and might dig their feet deeper.

It's unfortunate that the doctoral thought process often goes to that selfish, litigious place. As in, oops, I misdiagnosed my patient, what will happen to ME.

Now that you've been on immuno's, some of the tests may be negative. If you decide to pursue a biopsy, you would probably need to go back to that guy who did the last SFEMG or somewhere that has the capability of doing a GOOD muscle biopsy.

I know you've kept a journal of symptoms but have you taken a step back, reread it and come up with a summary of when things happened, what the main symptoms are, etc.? Maybe it's time to revisit that.

My symptoms are classic MG but there are those who don't have the classic profile and still do have MG. And there can be overlap issues, such as autonomic dysfunction. I wish there were an autoimmune clinic somewhere that specialized in all of this!

Doubt isn't fun to live with. I hope you can sort it all out soon.
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DesertFlower (01-30-2012), Stellatum (01-30-2012)