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Member
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Join Date: Sep 2011
Location: Chicago
Posts: 306
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Member
Join Date: Sep 2011
Location: Chicago
Posts: 306
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It's my understanding that PN is a general term and there are different types? That would make sense with RSD being a form of PN. I think even carpal tunnel is a form of PN as well, if I'm not mistaken.
I have RSD, though. My first pain management doctor did 6 lumbar sympathetic blocks on me and I got temporary relief from each of them, which shows that the pain is sympathetically mediated. RSD can also be non-sympathetically mediated, though, too. And then there are 2 types, one of which is from direct damage to a nerve and the other is not. I didn't have any direct damage to a nerve, I simply was running on a wet floor to answer the front door quickly and slipped and fell on my knee. From there it went onto spread to my other knee after surgery (thought the problem was orthopedic for awhile). It took me a year and a half to get a diagnosis. This last summer the burning started spreading through my legs, but no other symptoms, thankfully. Now more recently the RSD has spread to my wrist, and I have all the symptoms there. My SCS is just for my legs, though. Unfortunately the spreading is pretty common with RSD.
Some people don't believe in SCS's for RSD, because any surgery can cause spread, sometimes even full-body spread. I have burning sometimes that travels throughout my body, but it's not all the time, thankfully, and I had that well before my SCS was implanted. It's definitely a tough decision to have to make, because you need to decide if the risks are worth it. For me they were, and I don't regret my decision.
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