Hi! Welcome to NT.
Those of you with small children to raise have my utmost respect and awe. I remember how difficult it was to raise my two boys in seemingly good health. I can't imagine trying to do that now.
I'm glad to hear you've got a good Neuro in your corner. It's a long process for most of us to get a diagnosis. Hang in there and keep coming here. Lots of fantastic folks who really do understand.