Quote:
Originally Posted by daniella
Hi.
I have peripheral neuropathy and rsd. If you google Dr Kirkpatrick in Tampa he has videos of people under ketamine infusion. I had a lot of fears like you and still do but the videos actually comforted me though regarding myself I still feel nervous.
Trust me I understand not knowing what is right. I also get a lot of conflicting suggestions by doctors. For ex when I went to a pain doctor he suggested the scs so I went for another opinion who stated a catheter then went for a 3rd opinion and can you believe I got a 3 rd suggestion? I think research and just weighing the pros and cons.
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Oh boy what a whirling mass of confusing fun

! So what did you decide? (If you don't mind my asking) How can you get educated yourself when all these educated dr's offer something different - that scares the heebeejeebee's right out of my skin!!!!!! And even doing the research gets confusing and difficult at times. For me, I get frustrated at trying to decipher whether something is sponsored by a particular manufacturer, or company. Also seeing contradicting information, articles or studies and then evaluating them for authenticity - ugh! Why all the inconsistency? My neuro would say because they just don’t understand most pn well enough, and I have to agree after what i have been through and read on this site - its like being in the 1600's and just beginning to explore the earth-
and still thinking its flat! There is just so much confusion and controversy with pn. I am stunned on how little is know by the medical world in general. I mean I know 100x more than my pc dr. does just because I am always reading things here and going through what i have gone through. well enough of that
Thanks for the link - i will try to look at the video. I have slow-motion-dial-up and-600-year-old-phone-lines

So videos often wont load, but I would like to take a look.
I just got a call from my pm dr and he had talked with my neuro who wants to put me on fish oil and aspirin? uhhhh? I need help with that... Now I think mrsD has talked about fish oil - but is that to help with pn? and what does the aspirin do for pn?