Thread: Hello, new here
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Old 01-31-2012, 03:19 PM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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Welcome to NT, Azlin...sorry it's for this reason, tho...

There's a lot of info, support and laughs here (tears occasionally too). I love coming here...feel less alone, and always a huge amount of info when I have a question.

It took me 3 years after I first saw a neuro before I got a diagnosis of MS. I was first told it was migraines (which I never had). My lesions were in the "wrong" place...That neuro dropped my insurance, so I went to a specialist at Univ. of Chicago. She told me it was my fibromyalgia. Uh huh.

Then I went to a neuro nearby. He specialized in strokes, but I heard he was a good doc. He put me on a wait and see like you. A year later I had a new huge symptom, and new lesions on MRI put me in the "Yes you have MS" column. I see a different neuro now. He has told me my lesions are in different areas than he usually sees, but the symptoms totally are MS.

Definitely keep a symptom journal with dates of onset as well as when they go away. Also note if you are reacting to heat, stress, etc, as they can make symptoms worse.
I also keep a list of questions I want to ask the neuro, because I always forget them when I see him. I bring someone with me to all doc visits...helps me because I can't remember what he has said.

Get rest, eat good food, drink lots of water, and try to get some activity, even if it's a walk...and never give up...

Glad you found us...
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