This is definitely a great place to hang out. I've already found a wealth of information. I know you can all relate to how it feels to not know. It's been very difficult, I am very grateful that my husband is starting to understand more.

I have an 8 year old daughter and 4 and 5 year old sons. They keep me as busy as I can keep up with and they are my life

I've been getting copies of the reports from the MRI's and some of the bloodwork. I also got a copy of the lumbar puncture from Mayo Clinic. Even a copy of the report from the EEG my neuro seemed to think I needed (thank goodness for good insurance) but I don't have the disc's. I'll have to find out how to get those. I also don't have copies of her reports from office visits, although she usually does read them back to me at my next appt so I can remember what we talked about (my memory is really terrible these days).

My brain MRI was done with/without contrast, but the c spine MRI was only without contrast. On my follow up MRI next July I think I'm going to request she order it for cervical and thoracic spine along with the brain and make sure it's done both with and without.



Az