I have M.S. and M.G., that being said, my neuro felt the M.G. was causing my swallowing to slow down since April and then stop completely in July.
I've been given 3 rescures of IVIG to bring me out of it but that didn't work.
He did a emg on my face and said my face was strong, so he sent me to a MG specialist and she said it is Not a neuro muscular problem thats causing my swallowing to be so bad.

Now we are back looking at the MS. He the Neuro had me go for a reg. 1.5 Mri and it didn't show any changes in 4 years so he fiqured its not the MS.
He finnally spoke to his Neuro partners in the group and they said I should have a 3T MRI done because it picks up more and clearer pictures if I have lesions in the brain stem area.

I'm hoping and praying this machine will give me the answer, good or bad, why I can't swallow to the point that I have had to live with a peg, feeding tube.
Has anyone had a 3T MRI. I don't do well in MRI machines but the doctor order some valium for me to take before going.

The Strange part of this case is that I can swallow when I go into a sleep state, other wise as soon as I'm awake I can't even swallow my saliva, very scary and annoying to have to keep spitting into a tissue so I don't choke.

I'v been told by the doctor that there is the conscious swallow and there is the unconscious swallow and they are on differant parts of the brain.
I could Not do the bariam swallow test, I have no signal going to my throat to swallow so it just runs down my throat and I choke. I have no gag reflex at all. I had a speech therpyist help me with Vital Stem for 3 months and there was no improvement, I just can't get a signal to my throat to swallow