So sorry to hear you're having so much pain and confusion. I agree with Mark it's hard to gauge if this is post-surgery pain and the tweaking that most of us had to go through for quite a while (only a few were fortunate enough to be able to self-tweak) as you do not have a trial to compare this to.

I know for me when I have it turned up too high it affects my leg muscles, esp.my upper leg muscles. And when I turn it down, or even off, it can take several days for those muscles to finally relax due to their being stimulated too much. I had to get tweaked many times and I remember the rep. telling me he didn't care if I "felt" the stimulation and not to focus on that aspect, but rather to focus on pain reduction. So maybe you need to turn it off for a while, let your muscles relax and then start at a lower setting and ramp it up slowly from there. Don't worry about feeling the stimulation. When that was what I focused on, I got my muscles overtaxed and it was difficult to figure out just where the pain was really coming from and what needed to be adjusted.

I sure hope and pray that you get the help and attention that you need to deal with this! You'll be in my prayers!!