Geode, Maybe if enough other doctors document this and forward notes on to a neurologist, they might start to see the picture.

I can't remember - have you seen a pulmonologist or a neuro-ophthalmologist to further document your symptoms?

Is there anyone in your area who can recommend a good neuro to you? Sometimes an "expert" can be good and sometimes a "regular" neuro can be. I personally think they ALL should be good at taking care of MG.

Don't give up. It sounds like you have at least one doctor who can see what's going on. Does she know of a neuro you can see?

Annie