Junior Member
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Join Date: Feb 2010
Posts: 99
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Junior Member
Join Date: Feb 2010
Posts: 99
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I agree with Mike to go with your gut feeling on what you think might help. Everyone is so different with how they respond to treatment. You know how you're feeling all of the time. Your doctor only sees you for a brief visit. I still keep a log of how I'm feeling; otherwise I forget the specifics when I see the neurologist and my tendency is to downplay things.
I had 2 days of IVIG several months ago; arm and leg weakness responded extremely well so my neurologist gave me 2 more days the next week thinking that would help more with the double vision. Nope--didn't! So now it has been 3 months and I'm starting to feel the generalized weakness daily. I'm on prednisone now, but that hasn't seemed to help. Maybe I'm due for another IVIG. I just wish that they could find something to help the double vision!
I hope you have a good appointment and can jointly figure something out to help you.
Cate
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