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Old 02-03-2012, 06:24 PM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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Hi, and welcome. I am diagnosed with MG, and I don't have eye symptoms either. The symptoms you describe sound completely consistent with MG to me.

Many of us on this forum are seronegative (which means our AChR antibody tests came back negative, too). There are other antibodies they can test for (LEMS and MuSK). But even if they don't find any of the antibodies, it doesn't mean you don't have MG. Some people test negative at first and positive later, and some people never test positive.

You say you had an EMG. Did you have a single fiber EMG? That's a special kind of EMG with no shocks. The doctor puts a needle into your muscle and leaves it there for a few minutes, while he asks you to clench and hold the muscle.

I ask because a single-fiber EMG is much more accurate for detecting problems in the neuromuscular junction. Not every neurologist knows how to do a SFEMG.

Anyway, as to whether you should pursue this: yes, definitely! The symptoms you describe are classic MG symptoms. If your doctor doesn't want to pursue it, ask him if he can recommend another specialist. I stymied my doctors for 15 months until I was sent to a different city to see a doctor who specializes in MG.

Please know that if your symptoms suddenly get worse, or you're having real trouble breathing or swallowing, that this is a medical emergency. Go to the ER or call an ambulance. There are treatments for myasthenia gravis that they can do in emergencies (plasmapheresis or IVIg) that work really well.

Please don't hesitate to ask questions here.

Abby
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