Hi Stefie,
I don't know if you remember me, but I had a tumor(colloid cyst) removed Nov 2000. I was on seizure meds for a year post op and was allowed to wean off the med. I went about 2 years without problems, then the dizziness, visual disturbances in left eye started. I went back to my neuro, and she had me take another eeg just to see what was going on. It was abnormal, and she started me on seizure med again. I continued this for about 2 years, and saw her again last month after having another sleep deprived eeg. She says normal, and to start weaning again. Honestly, I am scared the same thing will happen. Things will go fine for awhile, then I wind up having to go back on the med.

Somewhat reluctantly, I have begun weaning from the Trileptal. We will see what happens.

One thing about the topamax, it will help with the headaches as well as seizure control.

Hang in there. You have gone through a very serious surgery, and recovery.
I can totally relate to your feelings of frustration right now.

Wishing you the best, Dodi