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Old 02-04-2012, 01:13 AM
JRock514 JRock514 is offline
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Join Date: May 2011
Posts: 5
10 yr Member
JRock514 JRock514 is offline
New Member
 
Join Date: May 2011
Posts: 5
10 yr Member
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Quote:
Originally Posted by fredebassett View Post
Sorry to hear about you plight. I have been reading these stories on and off for the past 5 years. I had my diaphragm paralyzed after having surgery to correct a blood flow problem to my right arm (subclavian bypass) I tried everything exercise, medication etc. I went to the Mayo Clinic and we talked about diaphragm plication surgery last year. A family crisis caused me to leave during testing and return home. During that year I found a group of surgeons that do nerve reconstruction. They removed 35 cm of nerve from my right leg and transplanted it attaching one end to my phrenic nerve and the other to my diaphragm. The jury is still out as the nerve regenerates at approximately 1 mm per day. This means if I have a full recovery I will not no for 8 -14 months. What i can tell you is that I can now lay on my back again. I can bend over and tie my shoes w/o gasping for breath. I no longer have the feeling like I was forced to eat until the point of feeling sick even though I may have not eaten for more than 24 hrs at times. My case was extreme. My diaphragm was elevated into my chest cavity (same place that occupies your heart) If nothing else happens the changes that did have already made a difference in the way I feel. I know of no one else that performs this surgery as it took me 5 years of searching to find them. Can they help everyone! NO! They are selective on who they take after a battery of tests. If you are interested in this please feel free to email me or post a note to this sight.
Hi,

I am curious to find out how you are doing? I suffered phrenic nerve damage in June of 2011 during a scalenectomy, and now have a completely paralyzed right side diaphragm. It has been rough on me, since I have a lot of trouble breathing now. The wheezing i have drives me nuts, as does the crackling. My father had severe emphysema and COPD, so I stayed away from cigarettes all my life since I saw the damage they did to him, and here I am now...Great!

I live in Canada, and finding a surgeon that does your procedure is not easy. I am working with an excellent team right not, too bad it took the medical system 5+ years to treat me though.

I have been told that diaphragm plication is one option for me, and nerve transplant is the other. How are you doing now? I have lost 40% of total lung volume based on tests from 2006 and post surgery 2011. Lying dpiwn is torture, my wife sometimes ties my shoes. I am turning 37 on Sunday, and devastated about all of this. I have a 2 year old son that I was looking forward to playing sports with, but that's not an option right now. I want to have the surgery soon, but at the same time, I want to make sure I proceed with the right one, if I am given the choice.

Thanks for your help....

Jeff
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