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Old 02-04-2012, 03:52 AM
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
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Hello and welcome Sessa

I was Dx'd in 2001, my lesion load very very high and the question of should I go on a DMD never came up - my neuro just told me to choose one. It never even occurred to me that I had a choice.

Glad I did though, because I am still mobile, not progressing much and feeling better (MS-wise) than I have in a decade. I did Betaferon for nearly eight years, but I went off that because I was getting hammered by the side-effects. So then I switched to Tysabri, and that has done me wonders. I have done that for just over three years - I am yet to have the JC test yet, but if that is OK, I think I will just stick with it.

I would think carefully if I were you, when you make your decision. Statistically (correct me if I am wrong someone), your outcome is better if you start with 'sensory' symptoms only (tingling, numbness, vision etc), but it is a much bigger deal if you start with 'gross motor' symptoms. Not quite sure where your symptoms fit in, if it compromised your ability to walk.

Good luck with your choice. Keep us posted.

Regards

Lyn
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Lyn
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.

Last edited by Lynn; 02-04-2012 at 10:37 PM.
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