Hi I was just wondering if you ever found a good doctor? I have the same problems. When my syringomyelia was stumbled upon by accident it was because I had sustained a neck/back traumatic injury in the Army. They medically retired me and sent me on my way. My pain is a lot worse and I don't want to end up peeing myself or in a wheel chair because my VA hospital is not very good at listening to things that aren't very common. I have been out almost 3 years and they have never even done a mri The Army attest did one every 90 days to keep tabs on it. Not seeing it in 3 years has me scared that it may have really grown in size, especially since my pain is worse and I feel like I can't hold any body heat most of the time. Any help you could give me would be great