I do think there are more people listening. Every day I find one new one that comes to the site. There are more that are listening too, and I have no doubt that this site is needed terribly for those that do find us. If you look at all the different threads, there are more than you think there are. I have welcomed at least five new people this last week. all of them are in need right now. There is a new girl, Samantha on the rare disorders thread, waiting to hear from us, and those that might be able to help her. she has had no other responce except from me. I hope you will check up on this young 17 year old who is in terrible trouble. She may also be on the parkensons site, as one of the medications she mentioned is taken for parkensons. She has Elhers Danlos syndrom type 4 which I have never heard of, but I am researching right now. She needs some more help. ginnie