Here are two very useful reference sites:

http://b12d.org/

and

http://www.pernicious-anaemia-society.org/

Dr Chandy's work on PA is now filtering into the system in the UK, and gaining recognition, and informing the NICE guidelines people. It will take a little longer to filter down to GP level, where there is little awareness. Like PD it is a B12 deficiency is little understood in terms of it's effect on the patient though the science of why it happens seems to be fairly sound, unlike PD it is only now gaining attention. As the long term effects of late diagnosis, and poor management are starting to come to light it is clear that a lot of people find it impacting on their lives in a major way.

If there are people in the US working on this and making a difference it would be useful to know.......especially for those of us on longterm ldopa treatment. It would also be useful to know how many of us here have diagnosed B12 deficiency and PD......