View Single Post
Old 02-05-2012, 11:04 PM
samanthahorn94x samanthahorn94x is offline
Junior Member
 
Join Date: Feb 2012
Location: Boca
Posts: 32
10 yr Member
samanthahorn94x samanthahorn94x is offline
Junior Member
 
Join Date: Feb 2012
Location: Boca
Posts: 32
10 yr Member
Default

Thank you! As of the moment my neurologist is at the NYU Hospital for joint disease, I have had at least three or four before her. I am confident that she has an idea of what is going on, but as you said because of my age is not ready to jump to any conclusions. I will be sure to ask about having a PET Scan done as it probably one of the only scans that I have not had. As for arriving at this point here it goes: About three years ago I started having a constant headache located on the right hand side of the head near the temple area, I went to the neurologist in South Florida and they tried different medications (Topamax, Ametryptiline), in short they didn't help. A few months later I developed pain all over and a small tremor in the right hand I was hospitalized, nothing came of it. Then I had a few fainting spells so I went to the cardiologist and they did a tilt table test and said that I have neuroly-mediated hypotension. I was put on midodrine and now that is under control. About six months later I started having upper abdomen pain on the right hand side, it turns out my gallbladder is only funcitoning at about 12% and I have biliary dsykenisa (for this I was put on bentyl, which has been working great up until recently). A about four months after this I experienced paralysis in the right with a dropped foot, and dystonia in the right hand with bad tremors. I was hospitalized again and had an EMG test which came back normal. After going through intensive physical therapy I regained almost full function of my leg, however the hand did not improve. This repeated once more, which is when my mom found the neurologist at NYU. The l-dopa has been a miracle, although my symptoms still give me a great deal of trouble I can open my hand again, the headaches have lessened a bit, and it has improved my gait. The tremors are still there and debilitating, but it is an improvement! I also experience fatigue, nausea, memory loss, and insomnia. For a while they thought it was chronic lymes disease (I had this when I was five years old) but after seeing a specialist and a serious of intense antibiotics it was ruled out.

Again thank you for responding to my post I appreciate it. Sorry for the long post
samanthahorn94x is offline   Reply With QuoteReply With Quote