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Member
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
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There are some real powerful drugs for this disease that are a long-term fix but come with dangerous side effects. I was on Imuran for 12 months and it made me real sick but it was working and we didn't know it until I was off it for a couple days and then felt like Superman. The side effects were masking the real effects. I am now on Cellcept which is also a long term drug. Most Neuro's want to get you on a long term plan so you can reduce the Mestinon and IVIG.
Mike
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