I was just diagnosed Dec 28, I'm very lucky that I found an amazing doctor, who was going to do everything she could to figure out what was wrong with me, she used all her resources and by the end of that day we had a diagnosis! They have been doing everything they can to fast track me as I was sooooo weak, I could barley walk let alone take care of my 2 year old and my 9 month old!! I'm going to an emergency neurologist appt Wednesday and I'm hoping to know more about what is going to happen in my future, I tell you it was pretty scary when it hit me so fast and hard, what a crazy disease