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Old 02-06-2012, 08:43 PM
sessa1978 sessa1978 is offline
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Join Date: Feb 2012
Location: Hobe Sound,florida
Posts: 5
10 yr Member
sessa1978 sessa1978 is offline
New Member
 
Join Date: Feb 2012
Location: Hobe Sound,florida
Posts: 5
10 yr Member
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To Lynn;
my onset was in oct.of last year(11),so it's only been 4mo. since dx and original symptoms that led to dx.I was numb and had muscle tightness from the bellybutton down.It started with just the toes,but by the time it was realized that I had ms,and they started the steroids,it had moved up to my waist and gotten really bad(5days),I couldn't feel my lady areas and that was the scariest part of it all.

I didn't think it would ever go away,and was a nervous wreck.once I started the steroids it got better,and in about 10 days it had gone almost completely away.Now I just get waves of tingling in the legs,and a little across my middle back maybe a couple times a day.It almost feels like when you get a chill. Thats the best way I can describe it.I was able to walk fine,even when it was at it's worst,but it did feel really strange.And sometimes my legs feel weak,but still with that I can walk just fine.Thankfully! I see my doctor in 2 days and am gonna go see a neurologist that knows a little more about ms than my primary does.
I think I would prefer not to take the dmd's but if I absoluutely have to,I will.Have heard about the LDN,but am on pain medicine,so I don't think I will be able to take it.Am not sure if I can stop the pain meds yet,but if I have to take any type of med for the ms I would prefer the LDNand would then quit the pain meds.any thoughts anyone has would be welcomed.Thanks!
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