Originally Posted by catra121

Good for you...definitely don't give up. I hope you are able to get some sort of relief soon because physical therapy is so important...but if the pain isn't being well managed then there's not a whole lot you can do until it is. I'm so sorry. You're lucky (if lucky is the right word) that the medical is still open...I know here in IL it would be EXTREMELY rare for there to be a settlement with open medical because (as my attorney told me and I have read online) there really wouldn't be any benefit to the insurance company settling if the medical is not closed...they just want it over and done with without there being an open checkbook for future medical...especially in an RSD case. But as you know...open medical isn't all it's cracked up to be with the constant stalling and fighting...which is actually detrimental to someone with RSD. I'm so sorry...SO sorry...for what you are having to go through.

I constantly remind myself how lucky I am with my RSD. Yes...it spread to my entire upper body which really sucks...but at least we knew right away (or at least I knew right away and the doctors finally caught up to me) that it was RSD so I didn't have to go through the delays, immobilization, icing etc in the spread areas like I did with my ankle when I first got that. I just made myself keep moving my hands and arms despite the pain and so far have been able to keep the majority of the function (though flares and swelling sometimes leave me completely useless). As bad as things can seem to be...there is always someone out there dealing with worse (lots of someones really) and I just keep reminding myself that I really am lucky.

Seems like you have an amazing attitude despite all that you have to deal with. Just keep fighting to get the very best medical care you can. Take care and good luck.