Quote:
Originally Posted by catra121
Venting is good and necessary...keeping it inside just leads to badness. You have to try to stay positive and keep yourself from tail spinning down into depression but at the same time it's important to let out all the bad thoughts and feelings because if you keep them inside they will build up and depression is exactly where you will find yourself.
My boyfriend laughs at me and says I'm just too stubborn to get depressed...lol...and it's partially true. But he knows how much it hurts...he and his family and my family...they can all see it in my eyes despite the brave face I put on. But doctors and people who don't know me very well often think the pain can't possible be that bad if I can still smile and laugh. Shows what they know...but I have tried to not let that upset me. If someone makes a stupid comment I just look them calmly in the face and explain the way things are and that usually quiets them down. People can think what they want to think and there's nothing I can do about it except try to educate them about RSD and what it is like. If they choose to stay ignorant then I just feel sorry for them...wouldn't ever want to be one of THOSE people...they should all be pitied because it is just a sad way to live.
|
True... I never understood the pain people go through daily like cancer people until this. I never even heard of RSD, CRPS or my Causalgia and Stage II until mid-2010, and then even today right now I am still learning more and more about it.
Like others have said, I would not wish this on anyone at all, and I am glad I get to endure it rather than so many others.Just difficult when I can't literally *talk* to anyone about it. People know I have it and endure great pain but choose to ignore it and me
I also try to smile and make my voice and face show as little of the pain I endure, which can be detrimental to me in the long run I read. I just don't like really asking for help or showing my pain as much as possible.
Glad there are others here though with success, remission, pain management, and great things to look forward to (like going back to work) that can give me some hope for something in my eventual future besides daily enduring