Originally Posted by teresakoch

Winic, where do you live? I know it's frustrating, but we have to remember that only about 600 new cases of MG are diagnosed in the US each year - unless you can find a doctor who likes to "find zebras", it can be hard to find one who is knowledgeable about MG and its many presentations.

While you're getting bloodwork done, you may want to ask for a Celiac Disease screen - these AutoImmune disorders travel in packs.....

If you had a "positive" reaction to the icepack test, it's a pretty good bet that you are looking at MG - the "positivity/predicatability" percentages for that particular screen are quite high.

Many of us had negative results come back on the standard MG tests, but were still diagnosed with MG. It's almost a diagnosis by process of elimination for people who test negative.

It is difficult - when you are so tired - to try and get answers. Believe me, all of us on here understand what you are talking about!