Member
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Join Date: Aug 2009
Posts: 642
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Member
Join Date: Aug 2009
Posts: 642
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I did the high dose cytoxan (immune system reboot) in November of 2010. It was fairly quick, harsh and effective. I remain so much better than I've been in a decade. I do, however, continue to use Cellcept and IVIG--they just work now!
I know of one person who did the monthly infusions X6. The side effects were harsh and the treatments were not effective.
I also know of someone who used oral cytoxan over the course of a couple of years. Worked like a charm, not really any bad side effects, but all the good results went away as soon as she stopped it.
Lots for you to think about.
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