Quote:
Originally Posted by ginnie
My heart goes out to you. I am sorry you are suffering. Being alone through it is hard. We can be here for you in spirit. I wish I could in person, just be with you to tell you that you have a friend. I do not have RSD. I have a bunch of other stuff. I do however know pain, and I have compassion for those who are in pain. My pain specialist keeps lowering my meds, even though my pain is worse. I have to also look for a new physician now. I hope the pain doc. you see, can give you some kind of relief. I hope you find the kind of doctor who can have empathy and make your life more tolerable. ginnie
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Saw pain doctor.
My first question: How long do I have here?
Answer: 30 minutes.
Strike 1.
Said I have RSD 24 months and ongoing.
Response: I don't handle RSD patients that have had it that long, at most I see any during initial diagnosis to a couple months and always refer them on.
Strike 2.
Said I have been enduring agony beyond anything imagineable, i get very little sleep, no help, no support, nothing. Said I am TRYING to get into a pain clinic but have been turned away until workers comp sends letters of approval first. BEGGED him to help me until I can get into one.
Response: NO. Just a paper with a name and number to call for s possible future appointment.
Strike 3.
Total office visit duration: 5 minutes.
Called "family" doctors office and begged them to help. Got call back about 2 hours later. Had explained entire situation also.
Response: NO. Got "referral" to a clinic I had already contacted and wants letters of approval first.
So here I am, back at ground zero, exactly as I have been for 25 months: alone, in excrutiating pain and told NO.
So tell me what's good about this... I can get drunk daily, that is my only pain relief I have. Typing doesn't help, it makes it worse.
Alone??? Answer: YES