Hi Cinders999 and welcome to our place to vent and get some good advice. Sorry you have had this mess for 16 years. I was pretty impressed at how long it took for your body to spread it. Unfortunately for me, from initial injury to full body took only four months for me...with my organs shutting down! Yup it was a crazy time. My initial site was my foot so I understand about the disuse of it and I walked on the outside of my foot for a year and a half. It is painful but you have to try and desensitize your foot all the time. If your foot only wants to go east and west then make it go north and south. I started out with ankle pumps and did them constantly just to keep things moving. Also, I used to take a towel and roll it up and put it under my foot and then just move it back and forth to try and desensitize it. Hurt like heck but it had to be done. I've had rsd for seven years now and each day is a journey for sure. Just try to do as much as you can each day without going over that fine line where you will be in lots of pain. Best of luck to you and welcome to our club! We are glad to have you here.
kathy d